I remember several years ago, when I first started using an iPhone I was giving Siri a command. But before I did, I got distracted talking to my boyfriend at the time and said, “Oh, my God!” Siri heard me and immediately replied, “I am not a spiritual advisor. You must get a human being for that.” I looked down at my phone in shock and amazement. Did I hear correctly? Yes I did. Then I started to laugh loudly. My boyfriend asked me what was so funny and I shared with him what Siri said. Then he started laughing too. Siri can do all kinds of things; but that day she made it crystal clear that things related to religion was not one of them.
Since that day, I have become more skillful using my phone including Siri. Today I give her all kinds of commands. What is the weather for today? What is my doctor’s number? Set the timer for 10 minutes. Text this or that person. Spell the word Entrepreneur. Open Netflix or Overcast. These are some of the daily commands I give Siri and she doesn’t complain. This little personal assistant built into my iPhone has become so helpful over the years. I hate to admit it but I have become a little dependent on Siri to complete these tasks. When it comes time to cook in my kitchen or write a blog post I am hunting around for my phone so I can call up Siri for assistance.
This month is the 10-year anniversary of Siri. Some might say in all these years Siri should be doing more like other personal assistants on the market. Yet, for me I am happy with her performance. I am a low-tech person and the help I get is exactly what I need. So, Hey, Siri happy anniversary.
For the last several years I have enjoyed the independence and convenience of online banking. But there was a time when that wasn’t the case. I remember getting on the bus to make that commute to the bank. Rushing after work to get there before they closed. Or getting up at the crack of dawn to get there right when they open so I could be the first in line before work. Or locating a branch that was open on the weekend in a local grocery store letting me do double duty. Filling out deposit slips and getting paper statements in the mail. Well, those days are over for me. Online banking has become such a regular part of my daily life it is second nature. I just get online and log in to my account. It is just that fast. Just that simple. Just that accessible.
Yet, that is the thing. Accessible. If online banking were not accessible then I would be up the creek without a paddle. My independence would be gone. My privacy would be gone. I would be susceptible to fraud and identity theft, which happen to me in my early years of blindness. I would have to depend on sighted folks to help me with my financial management. So, let me really break it down. How valuable and how critical accessible online banking is to my life as a blind person. Why it should be accessible to anyone with a visual impairment.
All of my financial institutions I have accounts with are accessible. This means checking, saving, investments and credit cards. All of these accounts I can access online with my internet connection and my screen reader. I can perform the same functions as my sighted peers such as checking balances, pay bills and read statements. And, of course, the most important thing, getting paid!
Paying Bills Online
Initially I started using online banking for its easy and convenient bill pay feature. The endless drudgery and challenges of paying bills the old fashion way was difficult as I lost more vision. It was too much paper to keep track. You know how that goes when it is bill paying time. You got to write numerous checks, note them in the check register and then file away the bill invoice. I had to do all of that as a blind person. Then I had to get sighted help to address envelopes for mailing. Whew, that is a lot of work! So, online bill pay became one of my smart money moves. My billers are located in one place and when I log in I just input the amounts for payment and press the send button. Done. No more writing checks. No more check register. No addressing envelopes. It is all done online.
In fact, online banking for bill pay is a God sent because I can track my payments to my biller. I had to incidents where a biller told me they didn’t get my payment. At first I was stressed out. Then I remembered I paid through online bill pay and those payments could be tracked. After a sigh of relief, I went back to my bank and sent a confirmation of payment. It was just that simple. My bank backed me up on both situations and showed that I indeed paid the bill. Both billers accepted it and the situation was resolved. Now, if I had mailed it the old fashion way I might still be disputing that bill months later. You just can’t track those checks in the mail to well. We have all heard that story, right? The check is in the mail. But with online bill pay I don’t have to deal with that.
Reading Statements Online
Reading my statements online is another feature of online banking that is accessible for me. In the past I would have to scan my paper statements to read with an accessible scanning software. Or get a sighted person to read them, or not read them at all. None of these options were ideal. Scanning the statement would result in columns and rows sometimes being off track leading me to read facts and figures incorrectly. A sighted person left me vulnerable even though they were trustworthy. Not reading them at all left me ignorant of important financial information. Today, I can make smart money moves by going online and reading my statements. I can read them from the actual website or in an PDF file. Either way the process is fairly accessible.
Getting Paid Online
Lastly, online banking is accessible with my freelance writing income. Last year I shared about trying to deposit my blogging checks on my bank’s mobile app. It was a stressful and frustrating situation because the app was not accessible. I advocated for myself but hit a brick wall. So, I pivoted and encouraged my client to do electronic payments and they did. Most recently I had a client that sent me directions to connect to their payment system for direct deposit. It was completely accessible and I got my check in about a week’s time. No more paper checks in the mail. No more getting a ride to the bank to make a deposit. Getting access to my freelance income is another smart money move for me. On a side note, I work with folks that use Quickbooks and this software is accessible. I can easily make electronic payments to them for services rendered.
National Online Bank Day
Today, October 11th, is National Online Bank Day. Ally Bank founded this day in 2015 to honor its 1 millionth customer. But this day has expanded into an awareness campaign educating people about the topic. You can easily scroll the internet and find tons of info about online banks. Since traditional banks are closed today because of the federal holiday of Columbus Day and Indigenous People Day, this might be a good time to look at online banking and make some smart money moves yourself.
I am a huge podcast fan! I started listening to them as a great alternative to audiobooks on my long commute to work. Even after I started working from home my enjoyment didn’t diminish. I listen to them while I cook. While I eat. While I clean the house. While I relax on the sofa. And even while I take a shower. Yes, I love a good podcast. I noticed and increased when the pandemic struck last year and they are what’s hot right now. It seems like an explosion and everybody and their mamma is doing a podcast. Every time I open Overcast, my podcast app, and do a quick little search there are more new shows available. It has been amazing the volume of content to choose from.
I have tuned in to shows about a variety of topics from news and politics, finance, health and fitness, technology and entertainment. The range of subjects are as wide and vast as your imagination. Yet, as a blind person it wouldn’t be right to talk about podcasts and not share about the ones for the blind I love on my blog and of course on International Podcast Day. These ten shows about the blind address distinct aspects of our lives showing our diversity, humanity and love for life.
1. AppleVIS is an excellent resource for blind and low vision users of Apple products like the Mac, iPhone, iPad, Apple Watch, and Apple TV. Their podcast provides current and useful info for me on my iPhone. I learn about updates to iOS, tips and tricks on using my phone better, fixes on apps and so much more. And all from folks who are blind just like me.
Bold, Blind Beauty on AIR
2. This is a fairly new podcast from the creator of Bold Blind Beauty, Stephanae McCoy. The focus is to “clear the air for more AIR”, meaning having Access, Inclusion and Representation because it’s essential for people with disabilities. We need these key elements to survive and thrive. The podcast reflects the content from her years of blogging where she interviews blind women and discusses health, beauty, fashion tips and so much more.
Eyes on Success
3. Peter and Nancy Torpey host the Eyes on Success Podcast and have been doing it for many years. They are truly dedicated to bringing useful and interesting content to the blind community. Each week they discuss products, services and daily living tips. They usually interview a special guest and have a segment called “The Tip of the Week,” which I find helpful.
Freedom Scientific Training and FS Cast
4. Freedom Scientific is the company that makes my screen reader, JAWS. They produce two podcasts but I am lumping them together. The first one, called FS Cast, is a show discussing updates to the software, interviewing special guests and is also an archive of their open line chat, where people call in and ask questions. The other podcast is an archive of their training materials. This is a wonderful experience for me as I can keep my Windows skills up to date in a podcast format. For example, I just recently learn some new skills for Excel that will help me navigate spreadsheets better. I can listen on my phone while doing the steps on my computer. In the past I had to do both on the same device which was hard and cumbersome.
5. I have taken remote courses from the Hadley Institute for the Blind and Visually Impaired and also listened to their podcast. This show brings on an expert in the field as it relates to blindness where specific topics are discussed. They have had mobility instructors, mental health professionals,,, a pharmaceutical company, a chef and many more. The topics are wide in range providing something for most everyone.
Mosen at Large
6. I would dare to say John Mosen is a tech geek. As the host of Mosen at Large, Each episode he features something in the technology arena along with other topics of interest. The sound quality is exceptional and easy to listen to. Depending on the topic he will air listeners comments and views during the show. I particularly love this part because I get to hear the international perspectives of people with vision loss.
7. This podcast hosted by Carl Richardson and Brian Charlson explores audio description and accessible entertainment. The goal of Picture This is to bring awareness to this medium through interviews, demonstrations and sharing resources. Since I love a good audio described movie and TV show this podcast is right up my alley.
Reid My Mind Radio
8. Thomas Reid hosts this podcast. It is from the perspective of a Black man adjusting to blindness as an adult. His content focuses on the typical things that most of us in the blind community deal with such as life, family, social stigmas and self-advocacy. On the Reid My Mind podcast, he will interview a special guest, discuss a thought-provoking topic, share a story or provide a useful resource along with his mindful and musical interjections.
Talk Description to Me
9. When this podcast came out in 2020 I was so excited because of the type of content each episode examined. The two hosts J.J. Hunt and Christine Malec discuss recent events and topical issues to explore the content of important images and help place healthy descriptions in their cultural context. Through the Talk Description to Me Podcast I have learned so much because it is more than just an audio description podcast but a conversation about current events as it relates to visual images.
Writing Works Wonders
10. This is my final blind podcast and interestingly enough my newest one. I started listening to Writing Works Wonders about a month ago because I wanted to expand my content and include podcast related to my writing career. This one was an added bonus because the writers are blind and visually impaired. The podcast, hosted by Cheryl McNeil Fisher & Kathleen P. King, is a recording from their live writing meetings and workshops where they might have a special guest, work on writing prompts, or critique each other’s work.
There you have it! My 10 favorite podcasts for the blind. So, what about you? What are your favorites? Share yours as we celebrate International Podcast Day.
For years I have said little to nothing about the September 11th attacks. Keeping my thoughts and feelings to myself for the most part. Not because I didn’t care or have empathy for all the people who suffered and died. Not because of the seriousness of the attack and later our involvement in a war. Rather it is because September 11th was such a visual event and being totally blind I struggle to have a connection to it.
Let me explain what I mean. First of all, this is not a blog post about where you were when x y z b happened. It is more about how my blindness protected or kept me from fully participating in a national, universal experience. This event was one of the first times I realized how my blindness separated me from other people. That I was different. In some strange, weird way it protected or kept me from entirely engaging in the pure devastation of the day. I was removed from it because I couldn’t see it. I was not able to totally share in our collective grief and horror.
Lost Vision Right Before September 11th
My father had passed away a few years before and I had gone totally blind in 1999. So, it’s not like I’m unfamiliar with grief, pain and suffering. Losing my vision and only 2 years prior was a real traumatic event and not one to shrug off easily. Therefore, I felt that my feelings of sadness and empathy were there and available. Still, something was missing.
Can’t Visualize the Attack
My roommate at the time attempted to describe the event. I had no visual memory of the Twin Towers only the Statue of Liberty. She positioned my hands as two tall buildings standing side by side. Then she took one of her hands and pushed it into one of mine to simulate one of the planes crashing into one of the towers. Yet, after all of that I still didn’t quite get what was happening. How do I visualize two tall skyscrapers falling down? How do I understand people jumping and falling out of buildings to their death? How do I visually process a large airplane flying directly into a building? How do I visualize a building collapsing into itself? And then the huge cloud of debris and dust that went up into the sky coming back down to cover everything and everybody on the ground. I could not visualize any of this no matter how hard I tried.
Book and Podcast Finally Help
It was years later when I read the fictional book title “False Impression” by Jeffrey Archer where one of the main characters was in New York on September 11th. The author vividly described the scene and action. The character was in one of the buildings in the staircase coming down. She escaped only to get caught up in the cloud of debris. Then I got it! The buildings falling, the people jumping to their death, and the cloud covering people on the ground. Things began to make sense. And all from reading a fictional book years later! Who would have thought?
It happened again last year when I was listening to the Talk Description To Me podcast. They did an excellent episode on September 11th. They described the day but more importantly they described photos. The one that is sealed in my memory is of a Black woman, named Marcy Boarders, who was covered in so much debris it was hard to identify her race until she wiped her face. She was called the “Dust Lady.” She was just covered from head to toe. It was just that awful. I could actually imagine this beautiful and distinguished woman in her nice business suit coated in filth and dust. As they described her appearance my heart sank. I was deeply saddened for what she and many others went through. Then to find out later she died from stomach cancer was terrible. Again, I got it. The images really sank in and I understood the gravity of the situation although many years later.
Speaking Up at 20th Anniversary
Now, we are here at the 20th anniversary. After all this time I feel I can say something about this day and not feel so disconnected. I can join in on the conversation when people recollect and share their stories. Yes, my blindness did protect me but I do understand better what happened from a visual perspective. It has taken time but knowing this helps me to be more mindful, empathetic and caring to people who experience loss on this day.
Before COVID came along and turn things upside down I physically attended two book clubs sponsored by my county library. One was bimonthly where we met at local restaurants. We would discuss some of the latest reads over appetizing cuisine and drinks. Occasionally, While being served, even the wait staff and management would chime in on our lively chatter. It was a great time to talk books, eat delicious food and socialize for about an hour.
My other book club met at the library in the activity room. AS we gathered once a month, we would have our discussion while munching on snacks of chips and salsa, slices of cake and various salads. We would laugh and share about our lives, work and family sometimes more than we talked about the book.
But that all came to a grinding halt and the library closed. No more book club meetings. No more discussions at local eateries. No more talking about life, work and family. Everything just stopped.
Using Zoom for Book Club
If you remember lots of people started working from home and kids were doing virtual learning. Everyone was trying to learn how to use Zoom. Slowly people started to use the videoconference platform for activities like family gatherings, medical appointments and exercise classes. Book club meetings were added to the list too. I was using Zoom before the pandemic. It started when I joined the Bookshare book discussion in the fall of 2019 and I participate to this day. Since this group is virtual members are from all over the place which is pretty cool. We are all blind or visually impaired because Bookshare provides digital books in text to speech. Each month we get together for a live chat to share our thoughts on reads we like, love or can’t stand.
Library Book Clubs Go Virtual
So, when my two library book clubs decided to go virtual I was good to go. It was not a huge transition for me because I was already a member of a virtual book club. I just added two more to the list and kept it moving! Now, you might be thinking, three book clubs are a lot. That is a bunch of reading. That is a lot to keep up with. Well, I am an avid reader and although today is National Read a Book Day, I read constantly all the time. I read while cooking and cleaning. I read before bed. I read while in the shower. I read while commuting. I read while exercising.
Plus, I am a very organized person and keep a calendar of all my meetings and a book list so I don’t miss out. Being an introvert has been useful too. I still get the socialization and interaction I want without it being too much for my life and personality.
Actually, juggling three virtual book clubs has been easier than I thought for exactly all these reasons. If I had to do this in person, well that might be another conversation all together. So, I guess in a weird sort of way, the pandemic has helped keep me active and social. Attending virtual book clubs have been enjoyable for me. Yet, since I love reading I know when we finally get out of this pandemic, and we will, I will go back to the library and meet in person. It will be an adjustment but it will be a joy.
You are sitting in a comfortable position. The room temperature is just right. There is relaxing music playing in the background. Someone with a soft and gentle voice is giving these instructions: Relax. Inhale through your nose and exhale through your mouth. Release with a slow awl. Sit back and close your eyes and gradually release the tension. Start with your toes. Working up your legs and hips. Moving slowly up your arms. To your shoulders, neck fingertips and head. Now slowly open your eyes and read my soothing blog post on relaxation. Well, maybe not the last part but you get the point.
I am relaxing today. Taking some time off. Maybe sleep in late for a change. Watch a movie or two. Read an audiobook. Or just do nothing. The last couple of Sundays I have been working. Writing blog post. Doing research. Taking courses to update this website. The list goes on and on.
It is good to take a breather from time to time. To rest, relax and release stress. To recharge my battery. I am an overachiever and Type A personality so I can get laser focused and I am in the zone. Then I am off to the races and not much else matters. The problem is I feel it later when my body is stiff, sore and aches all over. Making me exhausted and not good for much of anything else.
Blindness and Stress
also, because I am blind sometimes I feel the pressure to perform. To show the world and society blind people are smart. We are successful. We can contribute. We can do things. So many people have had little to no interaction with a blind person therefore all kinds of ideas and misinformation gets out there. Then people like me spend a lot of time pushing back on that and it is stressful.
When I saw on my calendar that Today is National Relaxation Day I knew I would definitely pause and take a break. And no guilt too because I have a legitimate reason. It is Sunday first of all and second a national observance. I got to do it, right? Yes, I do. So, I wrote this post in advance and when you read it I will be relaxing and not writing. I will not be working.
Relaxing Music Helps Me Sleep
Now the other thing is this. I don’t just plan to relax today but relax on the regular. It is important to make relaxation a part of my lifestyle and not just a one off. So, what I have been doing is listening to relaxation, or maybe the better word is meditation, CDs. I started borrowing them from my county library through the Hoopla app. OMG! This app is wonderful because it is free and fairly accessible. Not only can I download audiobooks but movies and music too. So, one day I decided to try one of the meditation CDs to help with my sleeping problem. I found it extremely helpful as it soothed me and cleared my mind so I could sleep. I have made it a part of my nighttime routine or when I want to take an afternoon nap.
Now, I am done. No more talking about relaxation because it is time to actually do it. I am going to go and relax and I encourage you to do the same. But before you do, let me know ways you relax best in the comment section.
Although today is National Watermelon Day eating watermelon has always been a part of my life. Ever since I was a little girl growing up in Texas these melons were constantly there during the summer months. My parents would buy these long, huge and heavy green fruits. Slice them up and place in the frig to get cold. Then later we would sit on the back patio eating slices of this delicious, sweet red food enjoying the summer afternoon. Ah, yes, those childhood memories.
Today, I have no backyard patio. But I do have the summer heat and my watermelon. Instead of purchasing large whole ones, I cheat a little. I use my visual disability as an excuse. Trying to do all that work washing, slicing, dicing and cleanup is just too much as a blind person. So, I buy it already cut up and ready to go. The grocery stores do all the work and provide them in little containers in chunks. This is perfect for my needs. I just swing through the produce section and grab a container or two of sweet and juicy watermelon. It is my favorite summertime fruit and complements my plant base lifestyle. Now, don’t get me wrong. I love grapes, peaches, nectarines, pears, pineapple, apples and all kinds of berries. But this time of the year watermelon is number one.
Here Are the Facts
It is refreshing. It is sweet. It is cool. It is nutritious. You just can’t beat it. I know, I sound like a commercial. And I am going to go a step farther with my praise in this post by sharing five facts from the Watermelon Board and Mayo Clinic about watermelons. And before I go I will even leave you with two quick and easy recipes you are sure to love.
1. Watermelon is a vegetable not a fruit. But all things relative it can be seen both ways. Watermelon is a member of the cucurbitaceae plant family of gourds and classified as Citrullus lantus. Related to the cucumber, squash and pumpkin. It is planted from seeds or seedlings, harvested and cleared from the field like other vegetables. But like the pepper, tomato and pumpkin, watermelon is a fruit, botanically. It is the fruit of a plant originally from a vine of southern Africa. Loosely considered a type of melon.
2. Watermelon is a disease fighter. It has more lycopene than any other fresh fruit or vegetable. Lycopene is an antioxidant linked to decreased risk of cancer, heart disease and age-related eye conditions, like macular degeneration.
3. Watermelon hydrates. As its name so clearly states, 92% of watermelon contains water. It is the most common melon eaten in America and is perfect for staying refreshed and hydrated on a hot summer day.
4. A watermelon is completely edible, including the seeds and the rind. This means watermelon is a zero-food waste food. The green skin is edible by cooking and/or pickled.
5. When selecting a watermelon Look it over carefully. Scan for firmness free from bruises, cuts or dents. Scratching is fine because of all the handling in getting to market. Next, lift it up. It should be very heavy for its size. Lastly, turn it over. The underside of the watermelon should have a creamy yellow spot from where it sat on the ground and ripened in the sun.
Two Watermelon Recipes
Now as I promised here are two watermelon recipes to keep you cool and rejuvenated.
1. Watermelon Arugula Salad
This one has no official measurements so add as much or as little ingredients as you desire.
*baby arugula lettuce
*feta cheese crumbles
*roasted nuts (Sliced almonds or pecans work best. Roast them in oil with a sprinkling of cayenne or red pepper)
*strawberry vinaigrette salad dressing
In a bowl place baby arugula lettuce. Top with diced chunks of watermelon. Add feta cheese crumbles and roasted nuts. Lightly toss. Then drizzle with strawberry vinaigrette. Eat and enjoy.
2. Watermelon Lemonade
Move over Arnold Palmer! This beverage will quinch any thirst. Easy to make with just two ingredients.
*Your favorite lemonade
Place watermelon chunks and juice in blender. Pour juice into pitcher with lemonade. Like an Arnold Palmer, half and half works best. Sip and enjoy.
Helen Keller once said that she would rather walk with a friend in the dark than alone in the light. Her statement reflects the importance of friendship. Close companionship is just as or even more critical than being sighted. I can relate. The friends that I have made over the years are so important to me. Friends who have helped me during those early days of my visual disability and are still around. Friends I made through work related situations. My book club friends. My blind friends. My writing friends. The list goes on and on. What would I do without the great and wonderful people in my life? Today, I give honor and appreciation for my friends. Today is National Friendship Day.
I tell you, dealing with this pandemic has made my friendships even more special. Even more precious. This virus has caused me to look closer at life and my own mortality. I remember when the pandemic first hit, I was calling and checking on friends. They were calling me too. It was so funny because I could hardly get any work done for my phone ringing and my email pinging. But I didn’t complain because I was grateful that someone cared about me. That someone was checking on me to see that I was okay and doing alright. And the thing is, we are still doing this over a year later. This pandemic is not over and we got to continue to stay close. To stay in each other’s lives.
Calling Friends on the Phone
So, how best to keep that connection going? Well, I use both old and new technology. I rely heavily on my handy dandy landline phone. Yes, I know, I am old-fashion and out of-date. But my landline phone works beautifully and I love it. It is so easy to pick up the phone and have a chat with a friend. Day or night. Weekday or weekend. It doesn’t matter. Hearing another person’s voice on the other end works wonders. It lifts the spirit. It puts me in a positive mood. It’s like a warm embrace or a tight hug-all through the phone.
But I also use my newer technology, my iPhone. Although mostly as an address book to store my friends contact information. I just ask Siri for their phone number and then dial it on my landline. I find it hard to talk on my iPhone because of its smooth flat surface. It slips too easily from under the crook of my chin. During conversations, my cheek gets warm and sweaty from the surface. This is not a good look or situation when I am trying to converse with a friend. Additionally, I haven’t found earbuds helpful yet. Maybe I should investigate that more.
Receiving Emails From Friends
When talking on the phone is not an option, emailing works well. Sending a quick note to check in or chat has been a great way for me to stay connected to my friends. Especially, those living away from me. I have friends I have maintained relationships with for years this way. We will send emails back and forth to see how things are going. How is work, the family, the weather, etc. It is so nice and heart-warming to get an email. It is nice to have electronic communication with another human being I have a close connection. Sometimes it takes time to type up the message, run spell check and read over for clarity. But it is well worth it because it is going to someone who is important in my life-my friend.
There are many other ways to stay connected to friends that I didn’t share. Text messages, social media, Zoom video calls, and even letters and greeting cards. But whatever method you use, I urge you to stay close.
When the pandemic struck and we were encouraged to wear facemasks I stopped wearing lipsticks. I wear mostly cloth ones and I thought wearing lipstick would be difficult to nearly impossible to do successfully. Wearing lipstick is my only facial cosmetic adornment. I had stop wearing eye makeup years ago and I never wore face powders, concealers or blushes. So, lipsticks became my jam.
I braille labeled each tube with the corresponding color to keep track. I have various bold bright colors in variations of reds, pinks, bronzy golds and browns. These colors look the best on my skin tone and I was proud to wear them often.
When my Mary Kay consultant sent me a complimentary tube of bold red lipstick, with my regular order, I was so excited to wear it. But before I could run that smooth bright color across my lips the world shutdown and I had to wear a facemask. I was so disappointed as I sighed, put my favorite lipstick color back in its box and stored away hoping soon the pandemic would be over.
Well, it is a year later and I still haven’t worn that lipstick! LOL! Okay, not exactly, I have pulled it out for a Zoom video call or two but you know that is not the same as wearing it out in public. So, when I heard it was National Lipstick Day I wanted to find out if it was possible to wear lipstick and a facemask too. I quickly discovered the answer is yes. Initially when I started reading online articles about wearing lipstick under a facemask, I thought it was a waste because first, no one would see it. I mean why wear a beautiful color of lipstick to only cover it up. In my mind that is the whole reason. Second, what would be the point because my lips would get smudged and stain my mask.
Wearing Lipstick and a Facemask
Nowadays with the pandemic, I only go out for small errands like grocery shopping. Everything else I mostly do from home. However, the pandemic is not over and I will probably be wearing a mask for a lot longer. So, it got me to rethink this whole lipstick mask situation. Maybe it is possible for me to pull this off after all?
If you are like me and missing wearing your lipstick, tired of wearing Chapstick or nothing at all, let me share a pointer or two. I read some tips in Harper’s Bazaar from Michelle Obama’s make-up artist, Carl Ray. First is to exfoliate & moisturize your lips. Our lips don’t naturally stay soft and smooth. Second use a lip primer or a concealer followed by lip liner applied all over your lips. Afterward apply your color. Keep in mind that matte finishes are preferrable over shiny ones that can stick to the mask. Also, you can blot off extra lipstick with facial tissue.
Focused on Pandemic and not Lipstick
As I read that article it dawned on me that this advice was nothing new. Even as I continued to read more articles online I found similar advice and helpful tips. This all made sense and I wondered why I hadn’t thought of it before now? Then I had an aha moment. Since dealing with this pandemic wearing lipstick has not been the priority. It has been trying to live, work and do the best I can. Wearing lipstick was one of those little rituals I did to prep before leaving the house. To feel pretty. To dress up. It was a part of my normal. Things have settled down a bit and now I can concentrate on life’s little pleasures again.
Today in the disability community, we recognize the signing of the Americans with Disabilities Act (ADA). In honor of this landmark civil rights legislation, I read an audiobook “Being Heumann: An Unrepented Memoir of a Disability Rights Activist” by Judie Heumann. She is a disability advocate and her actions played a vital role in the passing of this law. You might have heard of her more recently as she was featured in the 2021 Oscar nominated documentary Crip Camp that aired on Netflix. However, Judie is known much more than her role in a film. Penguin Random House summarized her story best, “One of the most influential disability rights activists in US history tells her personal story of fighting for the right to receive an education, have a job and just be human. A story of fighting to belong in a world that wasn’t built for all of us and of one woman’s activism—from the streets of Brooklyn and San Francisco to inside the halls of Washington—Being Heumann recounts Judy Heumann’s lifelong battle to achieve respect, acceptance and inclusion in society.”
Being Heumann Overview
Judie starts her story at infancy where she describes being paralyzed from polio at eighteen months and how her struggles for equality began early. She was labeled as a “fire hazard “because of her wheelchair as she fought to attend grade school. Her battles with the school system continued when she won a lawsuit against the New York City school system for denying her a teacher’s license because of her paralysis, where her actions set an example that ultimately improved rights for disabled people.
She continued to be a role model of activism and self-determination when she rolled her wheelchair through the doors of the US Department of Health, Education, and Welfare in San Francisco as a prominent leader of the Section 504 Sit-In. It was the longest takeover of a governmental building in US history. Judie and a community of over 150 disabled activists and allies were able to successfully pressure the Carter administration to implement protections for disabled people’s rights, igniting a national movement and leading to the creation of the ADA.
Different Backgrounds but Many parallels
I left encouraged after reading this book about Judie’s life. Although I didn’t become disabled as a child, am not Jewish or from the north and our disabilities are different, I did see parallels. I have worked several years at an independent living center. I have dealt with the struggles for inclusion and acceptance. I have felt shame or confusion when someone calls out my disability or ask intrusive questions. I have had struggles with accessing the basic things I need to live and work.
Fine Line of inclusion and Exclusion
I understood her point about walking that fine line of inclusion and exclusion. Judie shared an example of this when at church her mother didn’t want the pastor to carry her up the stairs to participate in the activities with the other children. Her mother thought it was too much and it would be a burden even though the pastor was okay with it. I could relate with this situation so strongly. It is part of the stress of my disabled life and not wanting to be a burden. It is about picking and choosing your battles. It is about not wanting to wear out your welcome. If I ask to many times, people will get tired and annoyed so I pull back and either don’t ask much or don’t ask at all, neglecting my needs in the process. It is also being in that vulnerable and precarious position of depending on people to be nice. If a person is nice about it then I feel okay to ask and move forward; if I sense some resistance then I pull back and don’t ask.
Focus on the Barrier Not the Disabled
One of the things I have learned about being a disability advocate and Judie also brings up in her book is the mindset we must have for the world to change. When she was pushing for Section 504 she and other activists had to help people understand it is not because you can’t walk that you can’t get into the building rather the building is not accessible. Changing the mindset and putting it on the barrier and not on the disabled person is the way of creating the change. For example, I wrote in a post about applying for jobs online and inaccessible sites. The answer is not for me to regain my sight or get a sighted person to help but to fix or create accessible websites that work with my screen reader.
Feelings of Being Ignored
Judie said when people ignore you, it is an intentional display of power. They act like you don’t exist and do it because they can. They believe that nothing will happen to them Ignoring people silences them. It avoids resolution or compromise. It opens feelings of unworthiness because it makes you feel that you deserve this treatment in the first place. In the end you are forced to choose whether to make a fuss or accept the silent treatment. If you stand up for yourself then you are viewed as aggressive because you break the norms of being nice and polite, which can make you feel worse.
OMG! When Judie said this, I was thunderstruck! What she said was so true and powerful. So many times, I have felt a loss of power as a Black disabled woman when I have been ignored by someone who didn’t want to deal with me. There would be times when I just didn’t have the energy or the resources to fight back. There have been times when I would regroup and try another approach but in the end being ignored really sucked! I would have to figure out other ways to reclaim my power and self-confidence.
It’s About Human Rights
Judie notes that people need to understand that Section 504 and the ADA was about civil and human rights for the disabled. Many people understand the fight for racial equality, or gender equality but when it comes to disability people don’t connect the dots. Many times, I have had to say substitute one of the other minority groups and replace with the word disability. Then people began to understand the struggle for equality. Judie said the basic logic in society is that people with disabilities won’t benefit as much from X, or Y or Z as much as people without disabilities. Therefore, X or Y or Z is not essential. They should accept the idea of going without. The same goes for transportation and employment. But what kind of logic is that really? The underlined assumption is that people with disabilities have less potential to learn and contribute. That we are less capable and not equal. Judie says the problem with this logic is that disability is part of the human condition. As we live longer more people will become disabled. What we should do is accept it, plan for it and build our society around it. Disability is coming whether we want it to or not. I totally agree and tell my temporary abled body friends this all the time.
I will end this blog on this profound point Judie made. We underappreciate our human rights in America. You won’t realize their importance until they are gone. These are such powerful words. Therefore, we must be constantly vigilant because our rights are precious. We can lose them. They can be taken away at any time.