I remember several years ago, when I first started using an iPhone I was giving Siri a command. But before I did, I got distracted talking to my boyfriend at the time and said, “Oh, my God!” Siri heard me and immediately replied, “I am not a spiritual advisor. You must get a human being for that.” I looked down at my phone in shock and amazement. Did I hear correctly? Yes I did. Then I started to laugh loudly. My boyfriend asked me what was so funny and I shared with him what Siri said. Then he started laughing too. Siri can do all kinds of things; but that day she made it crystal clear that things related to religion was not one of them.
Since that day, I have become more skillful using my phone including Siri. Today I give her all kinds of commands. What is the weather for today? What is my doctor’s number? Set the timer for 10 minutes. Text this or that person. Spell the word Entrepreneur. Open Netflix or Overcast. These are some of the daily commands I give Siri and she doesn’t complain. This little personal assistant built into my iPhone has become so helpful over the years. I hate to admit it but I have become a little dependent on Siri to complete these tasks. When it comes time to cook in my kitchen or write a blog post I am hunting around for my phone so I can call up Siri for assistance.
This month is the 10-year anniversary of Siri. Some might say in all these years Siri should be doing more like other personal assistants on the market. Yet, for me I am happy with her performance. I am a low-tech person and the help I get is exactly what I need. So, Hey, Siri happy anniversary.
For the last several years I have enjoyed the independence and convenience of online banking. But there was a time when that wasn’t the case. I remember getting on the bus to make that commute to the bank. Rushing after work to get there before they closed. Or getting up at the crack of dawn to get there right when they open so I could be the first in line before work. Or locating a branch that was open on the weekend in a local grocery store letting me do double duty. Filling out deposit slips and getting paper statements in the mail. Well, those days are over for me. Online banking has become such a regular part of my daily life it is second nature. I just get online and log in to my account. It is just that fast. Just that simple. Just that accessible.
Yet, that is the thing. Accessible. If online banking were not accessible then I would be up the creek without a paddle. My independence would be gone. My privacy would be gone. I would be susceptible to fraud and identity theft, which happen to me in my early years of blindness. I would have to depend on sighted folks to help me with my financial management. So, let me really break it down. How valuable and how critical accessible online banking is to my life as a blind person. Why it should be accessible to anyone with a visual impairment.
All of my financial institutions I have accounts with are accessible. This means checking, saving, investments and credit cards. All of these accounts I can access online with my internet connection and my screen reader. I can perform the same functions as my sighted peers such as checking balances, pay bills and read statements. And, of course, the most important thing, getting paid!
Paying Bills Online
Initially I started using online banking for its easy and convenient bill pay feature. The endless drudgery and challenges of paying bills the old fashion way was difficult as I lost more vision. It was too much paper to keep track. You know how that goes when it is bill paying time. You got to write numerous checks, note them in the check register and then file away the bill invoice. I had to do all of that as a blind person. Then I had to get sighted help to address envelopes for mailing. Whew, that is a lot of work! So, online bill pay became one of my smart money moves. My billers are located in one place and when I log in I just input the amounts for payment and press the send button. Done. No more writing checks. No more check register. No addressing envelopes. It is all done online.
In fact, online banking for bill pay is a God sent because I can track my payments to my biller. I had to incidents where a biller told me they didn’t get my payment. At first I was stressed out. Then I remembered I paid through online bill pay and those payments could be tracked. After a sigh of relief, I went back to my bank and sent a confirmation of payment. It was just that simple. My bank backed me up on both situations and showed that I indeed paid the bill. Both billers accepted it and the situation was resolved. Now, if I had mailed it the old fashion way I might still be disputing that bill months later. You just can’t track those checks in the mail to well. We have all heard that story, right? The check is in the mail. But with online bill pay I don’t have to deal with that.
Reading Statements Online
Reading my statements online is another feature of online banking that is accessible for me. In the past I would have to scan my paper statements to read with an accessible scanning software. Or get a sighted person to read them, or not read them at all. None of these options were ideal. Scanning the statement would result in columns and rows sometimes being off track leading me to read facts and figures incorrectly. A sighted person left me vulnerable even though they were trustworthy. Not reading them at all left me ignorant of important financial information. Today, I can make smart money moves by going online and reading my statements. I can read them from the actual website or in an PDF file. Either way the process is fairly accessible.
Getting Paid Online
Lastly, online banking is accessible with my freelance writing income. Last year I shared about trying to deposit my blogging checks on my bank’s mobile app. It was a stressful and frustrating situation because the app was not accessible. I advocated for myself but hit a brick wall. So, I pivoted and encouraged my client to do electronic payments and they did. Most recently I had a client that sent me directions to connect to their payment system for direct deposit. It was completely accessible and I got my check in about a week’s time. No more paper checks in the mail. No more getting a ride to the bank to make a deposit. Getting access to my freelance income is another smart money move for me. On a side note, I work with folks that use Quickbooks and this software is accessible. I can easily make electronic payments to them for services rendered.
National Online Bank Day
Today, October 11th, is National Online Bank Day. Ally Bank founded this day in 2015 to honor its 1 millionth customer. But this day has expanded into an awareness campaign educating people about the topic. You can easily scroll the internet and find tons of info about online banks. Since traditional banks are closed today because of the federal holiday of Columbus Day and Indigenous People Day, this might be a good time to look at online banking and make some smart money moves yourself.
I am a huge podcast fan! I started listening to them as a great alternative to audiobooks on my long commute to work. Even after I started working from home my enjoyment didn’t diminish. I listen to them while I cook. While I eat. While I clean the house. While I relax on the sofa. And even while I take a shower. Yes, I love a good podcast. I noticed and increased when the pandemic struck last year and they are what’s hot right now. It seems like an explosion and everybody and their mamma is doing a podcast. Every time I open Overcast, my podcast app, and do a quick little search there are more new shows available. It has been amazing the volume of content to choose from.
I have tuned in to shows about a variety of topics from news and politics, finance, health and fitness, technology and entertainment. The range of subjects are as wide and vast as your imagination. Yet, as a blind person it wouldn’t be right to talk about podcasts and not share about the ones for the blind I love on my blog and of course on International Podcast Day. These ten shows about the blind address distinct aspects of our lives showing our diversity, humanity and love for life.
1. AppleVIS is an excellent resource for blind and low vision users of Apple products like the Mac, iPhone, iPad, Apple Watch, and Apple TV. Their podcast provides current and useful info for me on my iPhone. I learn about updates to iOS, tips and tricks on using my phone better, fixes on apps and so much more. And all from folks who are blind just like me.
Bold, Blind Beauty on AIR
2. This is a fairly new podcast from the creator of Bold Blind Beauty, Stephanae McCoy. The focus is to “clear the air for more AIR”, meaning having Access, Inclusion and Representation because it’s essential for people with disabilities. We need these key elements to survive and thrive. The podcast reflects the content from her years of blogging where she interviews blind women and discusses health, beauty, fashion tips and so much more.
Eyes on Success
3. Peter and Nancy Torpey host the Eyes on Success Podcast and have been doing it for many years. They are truly dedicated to bringing useful and interesting content to the blind community. Each week they discuss products, services and daily living tips. They usually interview a special guest and have a segment called “The Tip of the Week,” which I find helpful.
Freedom Scientific Training and FS Cast
4. Freedom Scientific is the company that makes my screen reader, JAWS. They produce two podcasts but I am lumping them together. The first one, called FS Cast, is a show discussing updates to the software, interviewing special guests and is also an archive of their open line chat, where people call in and ask questions. The other podcast is an archive of their training materials. This is a wonderful experience for me as I can keep my Windows skills up to date in a podcast format. For example, I just recently learn some new skills for Excel that will help me navigate spreadsheets better. I can listen on my phone while doing the steps on my computer. In the past I had to do both on the same device which was hard and cumbersome.
5. I have taken remote courses from the Hadley Institute for the Blind and Visually Impaired and also listened to their podcast. This show brings on an expert in the field as it relates to blindness where specific topics are discussed. They have had mobility instructors, mental health professionals,,, a pharmaceutical company, a chef and many more. The topics are wide in range providing something for most everyone.
Mosen at Large
6. I would dare to say John Mosen is a tech geek. As the host of Mosen at Large, Each episode he features something in the technology arena along with other topics of interest. The sound quality is exceptional and easy to listen to. Depending on the topic he will air listeners comments and views during the show. I particularly love this part because I get to hear the international perspectives of people with vision loss.
7. This podcast hosted by Carl Richardson and Brian Charlson explores audio description and accessible entertainment. The goal of Picture This is to bring awareness to this medium through interviews, demonstrations and sharing resources. Since I love a good audio described movie and TV show this podcast is right up my alley.
Reid My Mind Radio
8. Thomas Reid hosts this podcast. It is from the perspective of a Black man adjusting to blindness as an adult. His content focuses on the typical things that most of us in the blind community deal with such as life, family, social stigmas and self-advocacy. On the Reid My Mind podcast, he will interview a special guest, discuss a thought-provoking topic, share a story or provide a useful resource along with his mindful and musical interjections.
Talk Description to Me
9. When this podcast came out in 2020 I was so excited because of the type of content each episode examined. The two hosts J.J. Hunt and Christine Malec discuss recent events and topical issues to explore the content of important images and help place healthy descriptions in their cultural context. Through the Talk Description to Me Podcast I have learned so much because it is more than just an audio description podcast but a conversation about current events as it relates to visual images.
Writing Works Wonders
10. This is my final blind podcast and interestingly enough my newest one. I started listening to Writing Works Wonders about a month ago because I wanted to expand my content and include podcast related to my writing career. This one was an added bonus because the writers are blind and visually impaired. The podcast, hosted by Cheryl McNeil Fisher & Kathleen P. King, is a recording from their live writing meetings and workshops where they might have a special guest, work on writing prompts, or critique each other’s work.
There you have it! My 10 favorite podcasts for the blind. So, what about you? What are your favorites? Share yours as we celebrate International Podcast Day.
Before COVID came along and turn things upside down I physically attended two book clubs sponsored by my county library. One was bimonthly where we met at local restaurants. We would discuss some of the latest reads over appetizing cuisine and drinks. Occasionally, While being served, even the wait staff and management would chime in on our lively chatter. It was a great time to talk books, eat delicious food and socialize for about an hour.
My other book club met at the library in the activity room. AS we gathered once a month, we would have our discussion while munching on snacks of chips and salsa, slices of cake and various salads. We would laugh and share about our lives, work and family sometimes more than we talked about the book.
But that all came to a grinding halt and the library closed. No more book club meetings. No more discussions at local eateries. No more talking about life, work and family. Everything just stopped.
Using Zoom for Book Club
If you remember lots of people started working from home and kids were doing virtual learning. Everyone was trying to learn how to use Zoom. Slowly people started to use the videoconference platform for activities like family gatherings, medical appointments and exercise classes. Book club meetings were added to the list too. I was using Zoom before the pandemic. It started when I joined the Bookshare book discussion in the fall of 2019 and I participate to this day. Since this group is virtual members are from all over the place which is pretty cool. We are all blind or visually impaired because Bookshare provides digital books in text to speech. Each month we get together for a live chat to share our thoughts on reads we like, love or can’t stand.
Library Book Clubs Go Virtual
So, when my two library book clubs decided to go virtual I was good to go. It was not a huge transition for me because I was already a member of a virtual book club. I just added two more to the list and kept it moving! Now, you might be thinking, three book clubs are a lot. That is a bunch of reading. That is a lot to keep up with. Well, I am an avid reader and although today is National Read a Book Day, I read constantly all the time. I read while cooking and cleaning. I read before bed. I read while in the shower. I read while commuting. I read while exercising.
Plus, I am a very organized person and keep a calendar of all my meetings and a book list so I don’t miss out. Being an introvert has been useful too. I still get the socialization and interaction I want without it being too much for my life and personality.
Actually, juggling three virtual book clubs has been easier than I thought for exactly all these reasons. If I had to do this in person, well that might be another conversation all together. So, I guess in a weird sort of way, the pandemic has helped keep me active and social. Attending virtual book clubs have been enjoyable for me. Yet, since I love reading I know when we finally get out of this pandemic, and we will, I will go back to the library and meet in person. It will be an adjustment but it will be a joy.
Last month my faithful washing machine said goodbye to me. It had been a long-term member of my household. Spanning the years since I went blind back in the late 90s when I was living in an apartment with two housemates. To the Y2K and people thinking the world was ending. Remember the excitement over that? My machine was still washing clothes through all of it. Then moving to a smaller apartment and one housemate, my washer kept right on spinning along. Next, it was the purchase of my home, the first Black president and now the pandemic.
This machine has been with me through thick and thin. Through many ups and downs. Through a couple of boyfriends and jobs. So, excuse me if I get a little sentimental for a quick minute. It is just that not many things in life have that kind of longevity. When it died I was surprised I was not distressed or dismayed. It had been two decades. Instead, I took the rational approach and reasoned my washer had served me well. All good things must end. Nothing last forever. I took it in stride. Plus, it couldn’t have happened at a more auspicious time. The 4th of July was right around the corner. I knew that I could find a good sale on a new one. Shoot even a dryer too! And that is exactly what happened.
No Fancy Smart Appliance
I knew before going to the store I had no interest in purchasing one of those smart home appliances you connect to your phone. The fancy ones with all the bells and whistles. I had heard about them for the kitchen. Devices like rice cookers, crock pots, dishwashers and even refrigerators are all connected to your phone these days. Sorry, but those of you who read my blog and know me personally know that I am a bit old fashion. Heck, I still use a landline phone with an answering machine for all those robocalls! I don’t go run out the door and purchase the first new hot thing smoking
. I use an item until the wheels fall off. Until it is falling apart. Case in point my washing machine.
Need Knobs and Dials
So, I told the sales lady none of that smart home stuff for me. I want the old fashion washing machine and dryer with knobs and buttons. I want to be able to touch and feel my appliance. She showed me one on display that was perfect for my needs and I purchased it.
Now, you might be asking why I am so dead set against the new fancy smart home devices? Well, glad you asked because I got a couple of reasons and it is not just because I am blind. Although my disability is close to the top of the list. So, I will start there first.
As a blind person I want tactual appliances and devices. Knobs and buttons are what works best for me. I can feel them easily and mark them as well. I usually apply a product called Hi Mark that goes on wet but when dry puffs up. I use this product for all kinds of stuff like my measuring cups, microwave, thermostat, and dials on my air frier, dish washer and curling iron. I have been using it for years and it works beautifully. Plus, it comes in bright colors for the low vision folks.
Smart Machines Are Expensive
I mentioned earlier that I purchased my washer and dryer during the 4th of July. I got a good deal but not sure that would have been the case with a smart option. Typically, smart laundry units are more expensive to purchase. And even more expensive to repair says Angie’s List. The main issue for high-tech appliance malfunction is the control board, which is the computerized system that operates the appliance. Meaning an expert repair guy or gal must come and fix the machine and it won’t be cheap.
WIFI Connection and Firmware Updates
Smart appliances are called this because of their innovative technological advancements. Appliances are connected to WIFI via a smartphone. So, if the connection isn’t working neither are the machines. This is too high tech for me. I just want to keep it simple and wash my clothes whether I got an internet connection or not.
My last point, about why my laundry isn’t smart, is the firmware might not be updated regularly. Smart washers and dryers can experience a lot of glitches with their apps, home hubs and connectivity. Additionally, there is no guarantee a smart washer or dryer will get firmware updates. This means if there is a problem the app and machine won’t be talking to each other and your goanna have to call that repair guy I mentioned earlier.
Is Your Laundry Smart?
You see how smart I am. Now, don’t get me wrong I appreciate technology however when it comes to some things if it ain’t broke don’t fix it. Old-fashion or what they call standard machines work just fine. The bottom line is to get the clothes clean and dry. To do it in the easiest and least complicated way available. That’s what I think. Tag, it’s your turn. Do you have a smart home appliance? If so, how’s it working for you? If not would you purchase one?
Helen Keller once said that she would rather walk with a friend in the dark than alone in the light. Her statement reflects the importance of friendship. Close companionship is just as or even more critical than being sighted. I can relate. The friends that I have made over the years are so important to me. Friends who have helped me during those early days of my visual disability and are still around. Friends I made through work related situations. My book club friends. My blind friends. My writing friends. The list goes on and on. What would I do without the great and wonderful people in my life? Today, I give honor and appreciation for my friends. Today is National Friendship Day.
I tell you, dealing with this pandemic has made my friendships even more special. Even more precious. This virus has caused me to look closer at life and my own mortality. I remember when the pandemic first hit, I was calling and checking on friends. They were calling me too. It was so funny because I could hardly get any work done for my phone ringing and my email pinging. But I didn’t complain because I was grateful that someone cared about me. That someone was checking on me to see that I was okay and doing alright. And the thing is, we are still doing this over a year later. This pandemic is not over and we got to continue to stay close. To stay in each other’s lives.
Calling Friends on the Phone
So, how best to keep that connection going? Well, I use both old and new technology. I rely heavily on my handy dandy landline phone. Yes, I know, I am old-fashion and out of-date. But my landline phone works beautifully and I love it. It is so easy to pick up the phone and have a chat with a friend. Day or night. Weekday or weekend. It doesn’t matter. Hearing another person’s voice on the other end works wonders. It lifts the spirit. It puts me in a positive mood. It’s like a warm embrace or a tight hug-all through the phone.
But I also use my newer technology, my iPhone. Although mostly as an address book to store my friends contact information. I just ask Siri for their phone number and then dial it on my landline. I find it hard to talk on my iPhone because of its smooth flat surface. It slips too easily from under the crook of my chin. During conversations, my cheek gets warm and sweaty from the surface. This is not a good look or situation when I am trying to converse with a friend. Additionally, I haven’t found earbuds helpful yet. Maybe I should investigate that more.
Receiving Emails From Friends
When talking on the phone is not an option, emailing works well. Sending a quick note to check in or chat has been a great way for me to stay connected to my friends. Especially, those living away from me. I have friends I have maintained relationships with for years this way. We will send emails back and forth to see how things are going. How is work, the family, the weather, etc. It is so nice and heart-warming to get an email. It is nice to have electronic communication with another human being I have a close connection. Sometimes it takes time to type up the message, run spell check and read over for clarity. But it is well worth it because it is going to someone who is important in my life-my friend.
There are many other ways to stay connected to friends that I didn’t share. Text messages, social media, Zoom video calls, and even letters and greeting cards. But whatever method you use, I urge you to stay close.
Today in the disability community, we recognize the signing of the Americans with Disabilities Act (ADA). In honor of this landmark civil rights legislation, I read an audiobook “Being Heumann: An Unrepented Memoir of a Disability Rights Activist” by Judie Heumann. She is a disability advocate and her actions played a vital role in the passing of this law. You might have heard of her more recently as she was featured in the 2021 Oscar nominated documentary Crip Camp that aired on Netflix. However, Judie is known much more than her role in a film. Penguin Random House summarized her story best, “One of the most influential disability rights activists in US history tells her personal story of fighting for the right to receive an education, have a job and just be human. A story of fighting to belong in a world that wasn’t built for all of us and of one woman’s activism—from the streets of Brooklyn and San Francisco to inside the halls of Washington—Being Heumann recounts Judy Heumann’s lifelong battle to achieve respect, acceptance and inclusion in society.”
Being Heumann Overview
Judie starts her story at infancy where she describes being paralyzed from polio at eighteen months and how her struggles for equality began early. She was labeled as a “fire hazard “because of her wheelchair as she fought to attend grade school. Her battles with the school system continued when she won a lawsuit against the New York City school system for denying her a teacher’s license because of her paralysis, where her actions set an example that ultimately improved rights for disabled people.
She continued to be a role model of activism and self-determination when she rolled her wheelchair through the doors of the US Department of Health, Education, and Welfare in San Francisco as a prominent leader of the Section 504 Sit-In. It was the longest takeover of a governmental building in US history. Judie and a community of over 150 disabled activists and allies were able to successfully pressure the Carter administration to implement protections for disabled people’s rights, igniting a national movement and leading to the creation of the ADA.
Different Backgrounds but Many parallels
I left encouraged after reading this book about Judie’s life. Although I didn’t become disabled as a child, am not Jewish or from the north and our disabilities are different, I did see parallels. I have worked several years at an independent living center. I have dealt with the struggles for inclusion and acceptance. I have felt shame or confusion when someone calls out my disability or ask intrusive questions. I have had struggles with accessing the basic things I need to live and work.
Fine Line of inclusion and Exclusion
I understood her point about walking that fine line of inclusion and exclusion. Judie shared an example of this when at church her mother didn’t want the pastor to carry her up the stairs to participate in the activities with the other children. Her mother thought it was too much and it would be a burden even though the pastor was okay with it. I could relate with this situation so strongly. It is part of the stress of my disabled life and not wanting to be a burden. It is about picking and choosing your battles. It is about not wanting to wear out your welcome. If I ask to many times, people will get tired and annoyed so I pull back and either don’t ask much or don’t ask at all, neglecting my needs in the process. It is also being in that vulnerable and precarious position of depending on people to be nice. If a person is nice about it then I feel okay to ask and move forward; if I sense some resistance then I pull back and don’t ask.
Focus on the Barrier Not the Disabled
One of the things I have learned about being a disability advocate and Judie also brings up in her book is the mindset we must have for the world to change. When she was pushing for Section 504 she and other activists had to help people understand it is not because you can’t walk that you can’t get into the building rather the building is not accessible. Changing the mindset and putting it on the barrier and not on the disabled person is the way of creating the change. For example, I wrote in a post about applying for jobs online and inaccessible sites. The answer is not for me to regain my sight or get a sighted person to help but to fix or create accessible websites that work with my screen reader.
Feelings of Being Ignored
Judie said when people ignore you, it is an intentional display of power. They act like you don’t exist and do it because they can. They believe that nothing will happen to them Ignoring people silences them. It avoids resolution or compromise. It opens feelings of unworthiness because it makes you feel that you deserve this treatment in the first place. In the end you are forced to choose whether to make a fuss or accept the silent treatment. If you stand up for yourself then you are viewed as aggressive because you break the norms of being nice and polite, which can make you feel worse.
OMG! When Judie said this, I was thunderstruck! What she said was so true and powerful. So many times, I have felt a loss of power as a Black disabled woman when I have been ignored by someone who didn’t want to deal with me. There would be times when I just didn’t have the energy or the resources to fight back. There have been times when I would regroup and try another approach but in the end being ignored really sucked! I would have to figure out other ways to reclaim my power and self-confidence.
It’s About Human Rights
Judie notes that people need to understand that Section 504 and the ADA was about civil and human rights for the disabled. Many people understand the fight for racial equality, or gender equality but when it comes to disability people don’t connect the dots. Many times, I have had to say substitute one of the other minority groups and replace with the word disability. Then people began to understand the struggle for equality. Judie said the basic logic in society is that people with disabilities won’t benefit as much from X, or Y or Z as much as people without disabilities. Therefore, X or Y or Z is not essential. They should accept the idea of going without. The same goes for transportation and employment. But what kind of logic is that really? The underlined assumption is that people with disabilities have less potential to learn and contribute. That we are less capable and not equal. Judie says the problem with this logic is that disability is part of the human condition. As we live longer more people will become disabled. What we should do is accept it, plan for it and build our society around it. Disability is coming whether we want it to or not. I totally agree and tell my temporary abled body friends this all the time.
I will end this blog on this profound point Judie made. We underappreciate our human rights in America. You won’t realize their importance until they are gone. These are such powerful words. Therefore, we must be constantly vigilant because our rights are precious. We can lose them. They can be taken away at any time.
Those of you who spend time surfing the web know full well advancements in computer technology have made it easier and better to search for employment online. As a job seeker, we no longer must go in person and fill out a paper application or physically fax a resume and cover letter. Today we can independently and on our own time go online to search for jobs.
With my screen reader, I can upload my resume and cover letter to a prospective employer’s website. Or I can create a username and password to log in to generate an online profile. Or I can fill out an electronic application and search for a job using an online recruiting job board. All these advancements are awesome because as a blind person I can apply for jobs from the convenience and comfort of my home. Yet, I have face challenges because these sites are not always accessible hindering me from applying for positions. Additionally, many employers miss out on qualified, talented applicants, like me, because they create external barriers with inaccessible online application tools.
This is why I was excited to share my job searching challenges with Inclusively, a professional network connecting candidates with disabilities, mental health conditions and chronic illnesses to jobs and inclusive employers. I gave several examples of how I struggled with inaccessible form fields, log in screens and online applications. Read all the details and learn more about Inclusively’s employment platform here.
The anthology Disability Visibility: First-Person Stories from the Twenty-First Century edited by Alice Wong has been on my audio bookshelf to read for months now. I finally stopped procrastinating and red this remarkable collection of writings by disabled and chronically ill activists, artists, and authors. The topics are as diverse as the type of disability presented. The 30+ entries cover technology, incarceration, fashion, homophobia, medical issues, organizing strategies, psychotherapy, racism, relationships, sexism and so much more.
Purpose of the Anthology
Wong is a disabled activist, media creator and research consultant. She is also the founder and director of the Disability Visibility Project, an online community supporting and amplifying disability media and culture. In the introduction, Wong shares about how story telling itself is an activity not an object. It is the closest we can come to a shared experience. She shares about how she didn’t grow up as part of the ADA generation. Rather it was her collection of stories about people with disabilities that helped grow her sense of community and connection. She wanted this book to reflect and contribute three things:
1. More stories about the disabled in the present while honoring the past.
2. More stories about every day disabled people verses highly profiled ones in the disability community.
3. Increase the diversity of the mainstream representation of disability which is mostly white and male.
The book is divided into four parts: Being, Becoming, Doing and Connecting. This anthology is not a disability 101 guidebook or the best of list. Wong makes it clear that these stories are not meant to explain disability and are not here to inspire, motivate or encourage the reader. Rather it is the disabled speaking in their own words about being disabled. The stories come in various forms such as: essays, speeches, an interview, a eulogy, statement and call to action. Content notes are provided for self-protection and access so the reader is given a heads up that the material might be difficult to read or triggering. This allows the reader to skip around and select the stories that are the most interesting or compelling. Unlike others, I read through the whole book from beginning to end. I wanted to hear about the lives of others with disabilities to feel a sense of connection and community. In this post I am featuring a few of the entries that resonated with me.
Part One Being
In part one, Being, the entry titled When You Are Waiting to be Healed hit a nerve with me because of its relatability. The author deals with a vision challenge called nystagmus where the eyes move around uncontrollably. She shares about her family and religious experience in looking to God to heal her vision problem. Boy, could I relate to this story! In the early days of my blindness, I was there too. Praying for healing and understanding because I was confused about what was happening to me. People around me praying and telling me to be faithful that God would heal me. But as my vision got worse, I had an aha moment. I realized this was going to be my life. Not that I stopped believing in God or prayer I just started focusing on learning how to live differently. The author shares that she was not a mistake waiting to be fixed and I totally agreed. I don’t look at my disability as something that I need to be healed from anymore. I don’t think that I need to be fixed or changed in anyway. I think this is exactly how I should be, and I embrace the beautiful life that I live.
Another similar story was I’m Tired of Chasing a Cure. Since my vision loss was due to an auto immune condition some people felt I should have spent more time researching cures and remedies. I just didn’t feel the need. The author brings up some powerful questions such as: how do we feel about ourselves? How do we feel when abled body people start advocating for cures which could eliminate our people entirely? These are some thought provoking questions and it is not that disabled people don’t desire a cure, but it would dominate their time. There would be no time to live. The author says the cost is too high because I miss living my life while chasing cures. This is so true. I have seen folks in the blind community spend a lot of time researching eye treatments, seeing various doctors, and having multiple surgeries to find a cure to their eye condition to the point they stop living. They also lack basic blind skills that could help them live a better life. Sometimes I think that maybe this is a part of the denial/acceptance phase of things. Yes, I know that being blind is not the sexiest thing in the world, but it is what you make it. It is about perspective and attitude.
Part Two Becoming
In part two, Becoming, Nurturing Black Disabled Joy was an insightful read because the author was so transparent about not always having joy. She said that “hope is my favorite word, but I didn’t always have it. My joy is my freedom.” We live in a world where we assume that joy is impossible for disabled people. That sadness, depression, loneliness, and shame are the only feelings. People wrongly assume the life of a disabled person must be miserable, But I tell folks all the time I have met many an unhappy, bitter, and pissed off sighted person. So, what does that say? We are all human beings and feel a range of emotions. The disabled are no different.
Part Three Doing
In part three, Doing, I absolutely loved the entry Why My Novel is Dedicated to My Disabled Friend Maddy. I felt a sense of connection because this author is a writer trying to get their book published. The author has a brain injury that makes using a computer screen hard. I appreciated the emphasis on interdependence where we rely on each other focusing on strengths. Too many times in society we have the “pull yourself up by the bootstraps” mentality but in reality, that doesn’t work. Maddy, a friend with a similar brain injury, helps the author edit the manuscript.
I could identify because in the blind community we do the same thing. One person might be totally blind and another low vision. We get in there and help each other with what needs to be done. As a writer, I could also relate because I have had to reach out to get additional support. I have had friends or paid assistance with reviewing my writing, taking pictures for my blog, or brainstorming writing ideas. Even this website and blog was not created by my efforts alone. I got help from others.
The author presses the need for more stories written by, about and for the disabled. I agree. Disabled success is not just about one person as portrayed in the media but many people behind the scenes helping to make the disabled person successful.
I don’t have the same exact disability as the author of Six Ways of Looking at Crip Time. Yet, I understood the need for extra time. I just never looked or thought about it as Crip time; that is time needed because of my disability. I find myself needing those extra moments in the morning to get up and get ready especially as I get older, and my body moves slower. I also need it in the afternoon. I find myself slow and sluggish around 3 p.m. and literally must lay down for a nap.
I have always noticed it in my writing. I have never been a fast-moving journalist. I knew back in college before I even became disabled those tight-type reporter deadlines were not for me. I preferred writing with a much longer lead time like for magazines or newsletters. Now, having a disability I see I am a slow writer. Pondering what I am going to say, listening closely to my screen reader, and monitoring my fingers snugged tight in a hand brace relieving my carpal tunnel
For many years I have advocated for better transportation. So, when I read the entry on the para-transit system in New York City I was nodding my head through the whole thing. I was like a parishioner in the amen corner at church, saying, “Yes, that is right.” Late pick-ups. Long ride around times. Drivers who don’t offer assistance. Poor route planning. Filing numerous complaints. Even being on TV and in the newspaper. Yes, I have done all those things too just like the author. However, at the end when she vividly described the driver using a cup to urinate in front of her on the bus that was it for me! The weird thing is I was not surprised because I had a similar experience. Not on PARA-transit but in an Uber car. I felt some of the same feelings as the author. Why did the driver wait until I was the only one left in the car to do this? Why didn’t he stop along the way to go to a bathroom? If I were a sighted white woman, would he have done the same thing? IF he would stoop this low, what other things would he do? And, no I do not want you to touch any of my belongings or take my hand. Unlike the author I was not too concerned for my safety. I think I was too mortified to think about that, but she brought up a good point about vulnerability because this person was exposing himself. Things can happen to women and specially to disabled women. Like the author I did file a complaint with Uber but not much came of it except an apology and that they would ensure I would not be matched up with that driver again.
Part Four Connecting
In part four, Connecting, I agreed with the entry titled The Beauty of Spaces Created for and by Disabled People also called crip space. This is a spot where you don’t have to justify or explain your existence. A place where disability is celebrated and embraced. Some think it is radical or tabu. The fact that we need our own space is disconcerting to people who can’t relate. The question becomes why you would want to associate with people like that. Perhaps for newly disabled people this kind of space would be overwhelming and uncomfortable. But for folks like me who are 20 plus years in the game being in a “crip space” can be quite reaffirming and enjoyable. It is because I feel comfortable in my skin and feel no shame around being blind. I have found my life as a disabled person fulfilling, happy and even adventurous.
As a matter of fact, I will be entering into my “crip space” next month when I attend the American Council for the Blind’s national convention. It will be my third year attending. This event is an opportunity for thousands of blind and visually impaired people to gather to talk, share, advocate and build bonds around blindness.
All the entries in this anthology communicate a wide array of experiences. Each an invaluable snapshot into what it is to live with a disability. The day-to-day struggles and joys of navigating the world through it. This collection of stories emphasizes the importance of sharing, writing, and documenting our own stories of life, love, joy, and pain.
Besides reading audio books and watching audio described movies I absolutely love listening to a good podcast. I got into them several years ago as a way to access news and entertainment on my long commutes to work. Now that I work from home delving into a rich podcast daily is still on my agenda. My interest is vast. I listen to podcasts on news, technology, health and fitness, history; and arts and culture.
Overcast Inducted Into Hall of Fame
In order to really listen to all these great episodes, I needed a great app. One that is fully accessible and easy to use with a simple design. The one that fits the bill for me has been Overcast hands down. AppleVIS thought the same when they inducted them into their iOS Hall of Fame recently. AppleVIS created the iOS Hall of Fame in 2011 as an acknowledgement of the hard work that app developers put into making their apps fully accessible to Voiceover users.
Overcast has some excellent features and benefits. Many of them I use often which AppleVIS highlighted on their site:
1. Subscribe to a podcast, or just add an episode: try new shows without committing. I really like this feature because new podcasts come out all the time it seems. I can listen to an episode and determine if it is worth my wild or not without a full subscription.
2. Search and browse for new podcasts, plus get personalized recommendations. Searching is easy breezy on Overcast. I can just dictate the name of the show and if it is available it will pop up in the results. Additionally, Overcast will let me know if shows are active or not which I really like. That way I know if I should subscribe or not.
3. Voice Boost makes every podcast the same volume with a broadcast-quality remastering engine. Since I listen to so many podcasts each one is produced a little differently and the audio quality can be different as well. But this feature smooths things out a bit so there are not huge variations in sound quality.
4. Download podcasts for playing anytime, even offline. Since the pandemic I have notice the WIFI in my area to be spotty at times. But I can still access my podcast regardless.
Other features I don’t use much but AppleVIS spotlighted are:
1. Smart Speed saves time without distorting the audio or sounding unnatural.
2. Create custom Playlists with smart filters and per-podcast priorities, and rearrange the list whenever you want.
3. Receive optional notifications when new episodes arrive.
4. Sleep timer automatically stops playback after any time interval you set.
5. Apple Watch app with standalone playback and cellular streaming.
6. CarPlay support.
Uncomplicated and Fully Accessible
AS long as podcasts are around, and I don’t see them going anywhere for a long time, Overcast will be my app of choice. I find it so simple to use and uncomplicated. When I am listening to a podcast, I don’t want to spend a lot of time figuring things out. I want to spend more time listening to the podcast itself than maneuvering around the app. I also appreciate their commitment to full accessibility to the blind community. Too many times I have downloaded apps from the App Store only to find they are partly accessible, like my bank app, or not accessible at all. I am left struggling and not sure how to proceed forward with what I need to do. Sometimes reaching out to the developer has been fruitful but sometimes it has not. So, thanks Overcast for creating an app that I can independently use. Your induction in the AppleVIS iOS Hall of Fame is well deserved.