Those of you who spend time surfing the web know full well advancements in computer technology have made it easier and better to search for employment online. As a job seeker, we no longer must go in person and fill out a paper application or physically fax a resume and cover letter. Today we can independently and on our own time go online to search for jobs.
With my screen reader, I can upload my resume and cover letter to a prospective employer’s website. Or I can create a username and password to log in to generate an online profile. Or I can fill out an electronic application and search for a job using an online recruiting job board. All these advancements are awesome because as a blind person I can apply for jobs from the convenience and comfort of my home. Yet, I have face challenges because these sites are not always accessible hindering me from applying for positions. Additionally, many employers miss out on qualified, talented applicants, like me, because they create external barriers with inaccessible online application tools.
This is why I was excited to share my job searching challenges with Inclusively, a professional network connecting candidates with disabilities, mental health conditions and chronic illnesses to jobs and inclusive employers. I gave several examples of how I struggled with inaccessible form fields, log in screens and online applications. Read all the details and learn more about Inclusively’s employment platform here.
When most people think of volunteering in the community it is something that you physically do such as feeding the homeless, building a house, tutoring/reading to children, registering people to vote, or running errands for seniors. All of those tasks are great volunteer opportunities and are well needed in the community but there are things that I have done as a volunteer sitting right at home. I have been volunteering all my life in a variety of projects. Even after I went blind, I still kept volunteering. I just had to shift the way I did it. I figured out a way to use my journalism skills to help my community and even during a pandemic. This week is National Volunteer Week; April 18-24. The Points of Light established it as an opportunity to recognize the impact of volunteer service and the power of volunteers to tackle society’s greatest challenges, to build stronger communities and be a force that transforms the world.
Started Virtual Volunteering
My first step into virtual volunteering was right after I went blind and lost my corporate job to downsizing, I was rethinking my career path and decided to volunteer at a non-profit. Since I was now a part of the disability community, I wanted to learn more and give back. I worked on a newsletter for a disability non-profit agency called disABILITY LINK. I collected articles and other content for the newsletter via email and phone. Wrote and edited the pieces, then submitted to my supervisor for publishing.
This was a good opportunity for me because it allowed me to give back, use my journalism skills in a professional way and learn about the disability community. It was a win-win all the way around. I began to realize that I could use my writing in a more meaningful way than just as a career.
Volunteering as a Radio Producer
The next opportunity came in 2006 where a friend recommended me for the position. I was asked to help produce the Eye on Blindness Show by the Georgia Radio Reading Service. Prior to this time, my experience had been in writing only. So, this stretched my journalism skills and I was up for the challenge. Each month I was directed to find guests for the 30-minute show, do research, and write up show notes and promotion materials. All I did from home using my landline phone and computer. I also collaborated with the show’s host on topic ideas and future guests. I volunteered for about 3 years on the show. Later I was asked to come back and not only produce but host as well; which I gladly did for another 3 years.
Volunteering as a Blogger
One day I got an email request for bloggers/peer advisors for a website called VisionAware. The website was a resource for people new to vision loss and they were looking for people to talk about their lives and give advice and information. Well, that was right up my alley. So, I filled out the application form and signed on. That was back in 2012 and I am still volunteering with VisionAware to this day. We meet once a month via Zoom conference call to discuss topic ideas and themes for the site. We work to give true and honest information with a real-life experience. I write blog posts from home and submit via email. Volunteering at VisionAWare is rewarding because I can help others like myself and I get to work with a great group of people.
Virtual volunteering has been a wonderful experience for me. The things I have learned. The people I have met. The lives that have changed. This is all for the good and all from the comfort of my home. There are creative ways to volunteer. We are still in this pandemic and traditional methods may not be possible but you can still serve your community virtually. Check out the Points of Light database for virtual volunteer suggestions.
When I was taking courses in journalism in college, I learned about women in the news but they were more modern-day women verses historical. Since March is National Women’s History Month, I wanted to honor some women that impacted the industry from the past. Some of the women are not as well-known while others are famous. Regardless, they left a mark on American journalism that is noteworthy because of their courage, self-determination and strength.
Published Stories on Lynchings
The first woman, Ida B. Wells, was a journalist I knew because of her bravery and doggedness in publishing the stories of lynchings. She was born a slave in 1862 in Mississippi. When the Civil War ended, Ida’s parents became politically active setting an example of activism and advocacy she would use later in life. They also believed in the importance of education. She became a teacher and moved to Memphis after her parents and one sibling died from yellow fever. Ida’s activism kicked off when she filed a lawsuit against a train car company in 1885for unfair treatment. She had been thrown off a first-class train despite having a ticket. Although she won the case locally, the ruling was later overturned in federal court.
After losing her teaching job Ida turned to journalism. In 1892 when three friends had been lynched by a mob, she began an editorial campaign against lynching. She was doubtful about the reasons Black men were lynched and set out to investigate several cases. She published her findings in a pamphlet and wrote several columns. Her exposure enraged locals, who burned her press and drove her from Memphis. Ida was passionate about highlighting lynchings that she traveled internationally. Abroad, she openly challenged white women in the suffrage movement who ignored lynching’s. Ida was often ridiculed and ostracized by women’s suffrage organizations in the United States because of her bold and fearless stance on the topic. Despite lack of support, Ida remained active in the women’s rights movement. She was a founder of the National Association of Colored Women’s Club which was created to address issues dealing with civil rights and women’s suffrage. Although she was in Niagara Falls for the founding of the National Association for the Advancement of Colored People (NAACP), her name is not mentioned as an official founder; but she later became a member of the executive committee. Disenchanted with their white and elite Black leadership, she soon distanced herself from the organization. Late in her career Ida focused on urban reform in Chicago. She died in 1931.
Poet and Journalist
The second woman was born shortly after the Civil War in New Orleans and later was actively involved in the Harlem Renaissance. Her name is Alice Dunbar Nelson and she was a poet, journalist and political activist. Her first collection of stories, poems and essays, Violets, and Other Tales, was published in 1895. She was married to the famous poet, Paul Laurence Dunbar and during their marriage she published a short-story collection, The Goodness of St. Rocque and Other Stories. This collection was published as a companion piece to his Poems of Cabin and Field in 1899. The volume helped establish her as a clever portrayer of Creole culture. The marriage didn’t last owing to abuse and alcoholism from her husband yet Alice continued to move forward in her writings and romantic life.
Alice was involved in the Harlem Renaissance, even though she hadn’t lived in New York for many years since before her marriage to Paul and was still living in Delaware at the time. Her poetry, much of it written earlier, was rediscovered through its appearance in journals and collections like The Crisis, Opportunity, Ebony and Topaz. She was also a journalist and wrote a syndicated column, Une Femme Dit, and contributed a wealth of reviews and essays to newspapers and magazines. During the 1920s, she coedited the Wilmington Advocate, a progressive Black newspaper. She also published The Dunbar Speaker and Entertainer, a literary anthology. Although a successful writer, Alice spoke about her challenges as a journalist in her diary. She discussed being denied pay for her articles and issues she had with receiving proper recognition for her work. Her diary was published in 1984 and remains one of the few diaries of a 19th-century African-American woman. Alice died in 1935.
First to Receive White House Media Credentials
Alice Allison Dunnigan was the first Black woman credentialed to cover the White House, the Supreme Court, the State Department and Congress. Born in 1906 in Kentucky, Alice was a bright and smart student, and started writing for newspapers when she was only 13 years old. She began her career as a teacher, but wasn’t satisfied so took journalism classes and wrote fact sheets about information omitted in the school curriculum. Alice knew that to move forward she had to physically move so in 1935, she moved to Louisville. There she worked for Black-owned newspapers like the Louisville Defender. Next, she moved to the Capitol. Initially she worked for the federal government as a civil service worker but still had her eyes on journalism. In 1946 Alice’s ambitions were realized when she became a Washington, DC, correspondent for the Associated Negro Press (ANP), the first Black-owned wire service, supplying more than 100 newspapers nationwide. It was her ticket to covering national politics. She worked mightily on getting her press pass and was approved in 1947, and quickly acquired White House media credentials the following year.
Despite these major achievements Alice still dealt with racism and sexism in the work place. While covering President Truman and President Eisenhower, Alice experienced discrimination. She was one of three African Americans and one of two women in the press corps covering President Truman’s campaign. During her years of covering the White House, she frequently asked questions regarding the escalating civil rights movement. In 1953 Dunnigan was barred from covering a speech given by President Eisenhower in a whites-only theater and was forced to sit with the servants to cover Ohio Senator Robert A. Taft’s funeral. It was not until President Kennedy that she was recognized as a member of the press when asking questions. Under his administration, Alice began a new career as a consultant. President Kennedy appointed her to his Committee on Equal Opportunity designed to level the playing field for Americans seeking federal government jobs. After retiring, Alice self-published her autobiography, A Black Woman’s Experience: From Schoolhouse to White House. She died in 1983, and in 2013, was posthumously inducted into the National Association of Black Journalists Hall of Fame.
First to Have Comics Syndicated Nationally
The next woman started off as a writer but was best known as a cartoonist. She was the first Black woman to have her comics syndicated nationally across America. Jackie Ormes, born in 1911, used her artistic talent to remark on political and social issues happening at the time. Her portrayal of positive Black folks went against long held stereotypical and negative images. Her first strip in the Pittsburg Courier, Torchy Brown in Dixie to Harlem, followed the adventures of Torchy Brown, a young ambitious Black teen who traveled from Mississippi to New York to pursue her dream of performing in the Big Apple. During the 1940s, Jackie worked as a columnist at the Chicago Defender and published her next cartoon strip, Candy, about a funny, hard-working and smart maid.
The Pittsburgh Courier published a new strip from Jackie after WWII called Patty-Jo ‘n’ Ginger. It centered around two sisters, Ginger, the older, stylish sister, and Patty Jo, the wisecracking, insightful little sister. The strip was so successful it ran for 11 years with more than 500 cartoons. In partnership with the Terri Lee Doll Company, Jackie created the Patty-Jo doll in 1947. This was the first nationally distributed high class Black doll that had real child-like features and an extensive, fashionable wardrobe. The dolls were extremely popular and the wish of many Black and white children. As the Civil Rights Movement grew, Jackie’s comic section was cut. She retired from cartooning and switched to painting. but later, Jackie had to stop painting entirely after developing rheumatoid arthritis. Still, she stayed active in the artist community through her seat on the board of directors of the Usable Museum of African-American History and Art. Jackie died from a cerebral hemorrhage in 1985. She was posthumously inducted into the National Association of Black Journalists Hall of Fame in 2014.
Newspaper Owner and integrationist
Daisy Bates is a name I quickly recognized but not for her journalism background. Whenever I would read about Daisy it was her affiliation with the NAACP and how she advocated for integration with the Little Rock 9 in Arkansas. But before she got heavily involved in school integration, she married a newspaper man and they both ran the Arkansas State Press which focused on the need for social and economic improvements for the Black community. This paper became known for its courageous reporting of acts of police brutality against Black soldiers from a local army camp. Their persistence and drive in spotlighting these abuses led many white business owners to cease placing advertisements in their paper. Regardless of the financial loss, they continued to produce their publication. In 1959 they were forced to close the Arkansas State Press due to threats of racial violence. But Daisy reopened it in 1984 and sold it several years later. For many years Daisy continued her advocacy in education and civil rights involvement. For her work, the state of Arkansas proclaimed the third Monday in February, Daisy Gatson Bates Day. She died in 1999 and was posthumously awarded the Medal of Freedom the same year.
All of these women had incredible stories of tenacity, strength and power. As I researched each one there was so much rich history on their lives, I struggled with featuring just the highlights because there was so much more than what appears in this blog post. These women were wives, mothers, sisters, friends and held other roles in their community. These women battled racism, sexism and all kinds of challenges as they tried to do their work as journalists. They were excellent examples and believed deeply in the power of the written word and its impact on their community and society. Journalism was not just a routine 9-to-5 job but a way to evoke social and political change. I can definitely relate and is also a reason why I chose journalism and why I wanted to recognize them this month.
After working many years in the disability non-profit sector, I have learned a lot of professional skills that have elevated my career. I am sure you have heard of a couple of them like: Don’t send an email out when you are feeling stressed, angry or frustrated because the outcome could be damaging. Or arrive at work and meetings 15 minutes early so that you are ready to go on time. Or keep clear of office gossip and politics. Yet one of the biggest tools in my career toolbox is networking. In today’s workforce, who you know is just as important as what you know. I feel that for people like me who are visually impaired, it is even more essential to network and build strong working relationships that can help lead to career success. As a result, I have been able to maintain my employment over the years primarily through my connections.
this week is International Networking Week and the perfect opportunity to reach out to current contacts and make new ones. You might be wondering how a person with vision loss networks and meets people? The answer is something I had to figure out through a lot of trial and error. Typical networking advice does not always work for those of us who cannot see so I had to add my own little twist to the experience. Now back in the days of BC (Before COVID) When I attended new events, I would contact the coordinator in advance and let them know I had a disability. This gave them a heads up and allowed time to explain I might need some extra help like a sighted guide as an escort to meet people. Other times I would just come to the function, sit down and converse with people who are sitting nearby. I have learned to not be stressed, put a smile on my face and allow the conversation and interaction to flow naturally. I know that some people might feel uncomfortable with interacting with a blind person so I don’t let that ruffle my feathers and I just take things as they come.
Current Methods to Network From Home
Now with the coronavirus still in high numbers, I am continuing to practice social distancing and work from home. Gone are the days, at least temporarily, when the typical in-person networking included: small talk, giving elevator pitches, and exchanging numerous business cards. Usually, networking involved attending large events where shaking hands and meeting face-to-face meant you could form a meaningful connection with another person. I have learned this can be accomplished through networking from home and fits perfectly with the fact I am an introvert . The possibilities of learning about a job opening, getting career advice, finding a mentor, meeting a future co-worker or colleague can all be done from the comfort of my house with my internet connection, computer, landline phone and adaptive technology . This is all a part of the new normal; yet the key to successful networking is to get to know people, have genuine conversations and add value.
The bulk of my home networking has been on LinkedIn. Since COVID I have ramped up my interaction a bit more. I have been trying to have more meaningful conversations and not just reply with the standard auto fill responses. I have also been making more comments on the pages of other fellow bloggers that are disabled or who write. Engaging with others that do the same kind of work I do helps build a connection. Lastly, I started attending my college alumni chapter virtual meeting each month. I have only been to a meeting or two but I am hopeful that being consistent will be fruitful and I will meet people there too.
New Methods to Network From Home
Also, I have been putting my network chops to the test in a new way. I signed up for two online courses related to my work. One is a blogging course and the other is for freelance writers. Both of the courses have forums which are new platforms for me and have challenge me in the way I engage with people. I decided to do it because I wanted to meet new people in my field and build relationships. I am optimistic that out of these courses I will meet some folks I can forge a long-lasting connection beyond the lessons so we can get together and talk shop about the writing life. additionally, because of COVID many writer conferences are going virtual this year which is a perfect opportunity for networking. I have never really attended a writer’s conference because of distance and cost yet this year I might do it.
A Network Challenge for You
My challenge to you is this. What one or two things can you do to move your networking forward this week? How will you engage more with your current connections? How will you make new ones in this time of COVID?
I am sitting on my sofa watching the 6 p.m. evening news. The reporter stops the broadcast for a news break about a bombing, police shooting, natural disaster or terroristic attack. The reporter gives all the relative information, i.e. the when, what and why. But the scene is all visual and I can only speculate what is actually happening. Since I have some visual memory and imagination I can kind of piece things together but as the years go by and I spend more time on the blind side of things my memories are fading. Certain things I don’t remember anymore and are getting hard to recall. Sometimes when I ask friends and family, they are hesitant to describe the imagery because it is disturbing and painful to watch so I don’t ask often. Other times I refer to newspapers and magazine articles for assistance because this print medium must “show not tell” in its description.
Well, I don’t have to totally rely on any of those things anymore. I can listen on my iPhone to a weekly podcast called Talk Description to Me. The two hosts J.J. Hunt and Christine Malec discuss recent events and topical issues to explore the content of important images, and help place healthy descriptions in their cultural context. Their dialogue is lively, witty, colorful and enjoyable. J.J. is a sighted man and a professional audio describer while Christine is female, blind and curious about all-thins visual.
This podcast launched in July with an intense and sobering description of the killing of George Floyd. Prior to this listening I had not had anyone describe his death for obvious reasons. It was a hard one to hear but I wanted to get a full understanding of exactly what happened to him and the huge national and international reaction. It all began to make even more sense to me after listening to this episode. I went on to learn about the uniform of a current police officer. I realized how much things have changed since I went blind. That officers no longer look like they did when I was a child nor when I could see. Their uniforms have a more militarize look to them. This also helped me put the pieces together with the reactions and protesting that has been going on. Things became clearer and made more sense. I also realize that being blind has kept me somewhat ignorant too my surroundings even though I am not living in a cave with no WIFI. I watch the news, read the paper, books and magazines. The world is incredibly visual and images are so powerful.
Next were the vivid descriptions of the recent explosion in Beirut and the past attacks on September 11th. I remember my roommate at the time trying to describe to me the airplanes flying into those buildings. No matter how she tried I still couldn’t get a clear visual of what that totally looked like. I really struggled with it. But this podcast helped immensely not just with the actual attack but the aftermath and memorial.
Now, I know this podcast sounds like doom and gloom. You might think, “Why in the world would I want to listen to this sad and traumatic stuff?” Well hold on. Not all descriptions on the podcast are disturbing or triggering. Other episodes focused on social media like Facebook and TikTok; or sport teams and consumer products like McDonalds and Uncle Ben’s rice. A recent episode was on Halloween which described the creative costumes like a Zoom call screen and the coronavirus. I thought how incredibly innovative people are in the midst of a pandemic. We are all trying to keep some level of normalcy in our lives.
Even though J.J. and Christine are based in Canada they have objective conversations on American issues and topics. They did a couple of episodes on our presidential election. One described this non-scalable fence around the White House. I knew about some kind of fence but I was taken aback when I heard about this one. Apparently new physical barriers were put up around election day. I remember when I took a vacation trip to DC and visited portions of the Mall. So much has changed since then. They also described one fence that was coated in protest signs. They. discussed current jerrymandering maps. Images of long lines to vote with social distancing. J.J. described photo essays of poll workers and voters. They read the headlines of national and international front pages with their images.
This podcast is so full of information yet richly entertaining. Presented in a respectful and unbiassed way. each time I listen I walk away learning something new. It brings a fresh perspective to current news trends and keeps me abreast. I look forward to each new episode where the “visuals of current events and the world around us get hashed out in description-rich conversations.”
If someone told me in college while pursuing a journalism degree that 6 months after graduation, I would be visually impaired and later have a career in the disability non-profit world I would have said they were crazy. But that is exactly what happened! During that time, I was laser focused and incredibly ambitious; obtaining a public relations internship each semester. I was determined to work in Corporate America, make lots of money, own a home and a fancy car. However only one of those things happened! I got the home but the rest went out the window. Obviously, God had other plans for my life. I ended up working and writing in the disability non-profit world as a direct result of my disability. It has been about 20 years and I have no regrets. So, why am I sharing all of this? Well, today is National Nonprofit Day. This day recognizes the goals and positive impacts nonprofits have on communities and the world. Through nonprofits, awareness, research, and aid reach the people who need it most.
Working at Disabled Non-Profits
This above statement holds true because after losing my vision I needed to understand how to advocate for myself as a disabled person. My career plans for Corporate America didn’t pan out. Plus, I wanted to find a way to use the well-earned journalism degree I had just recently obtained. So, for 7 years I worked at disABILITY LINK, an independent living center that focused on advocacy, peer support and self-determination for people with disabilities. There I learned about ways to speak for myself, advocate for others and the self-confidence to start writing. My next job was at the vision rehab center that provided the training I needed to be more independent as a blind person. At the Center for the Visually Impaired I worked as their public education and outreach person. I gave speeches, conducted tours, managed volunteer speakers, wrote for the community bulletin and started their blog, SightSeeing. Also, I was side hustling working for two other nonprofits. At Disability Resource Group I was contracted to do public education and community outreach on their breast cancer project. I reached out to disabled women encouraging them to get annual mammograms and supporting them in self-advocacy.
Writing at Disabled Non-Profits
The other nonprofit was Blind Skills, Inc who published Dialogue Magazine. For 17 years I wrote a career column where I interviewed blind and visually impaired people about the types of jobs and careers they pursued. Over the years I met chefs, small business owners, travel agents, property owners, musicians, artists, app developers, school teachers and more. Using my blogging experience and interest in web coding landed me a contract position with VisionAware where I coded and edited blog posts from our visually impaired peer group. Today, I work from home as a freelance writer. I have a contract assignment with Outlook Business Solutions, another agency that focuses on helping those with vision loss. There I write and edit blog posts and have written stories for their annual report.
Volunteering at Disabled Non-Profits
While working and writing at nonprofits I developed a sincere passion for the nonprofit world and the mission they have to help those in need. I used my journalism skills in a new meaningful way through a volunteer opportunity at the Georgia Radio Reading Service. Instead of writing I was on the radio in the broadcast world. I hosted and produced a show called Eye on Blindness for about 3 years. I interviewed guest in the blind community on a variety of topics. I no longer volunteer at the radio station but write Occasional blog post for VisionAware and recently wrote a post for one of my favorite libraries and another non-profit, Bookshare about the ADA.
Who would have ever known this would be the direction my life and career would take me? But I have embraced it and am grateful for this wonderful journey; that is still not over. I encourage you to learn about non-profits, support them either as a volunteer or by monetary donation. We need them in our community, society and the world.
July 26th will mark the 30th anniversary of the Americans with Disabilities Act (ADA). It was in 1990 when I was a freshman in college that Former President George H. W. Bush signed this powerful piece of civil rights legislation into law. On that day, with disability advocates and policy makers present, the door was opened wider to more opportunities and access. People with disabilities have struggled with full inclusion into mainstream society for many years and the ADA was passed to help remedy this problem. The ADA has four principals: equality of opportunity, full participation in society, independent living and economic self-sufficiency for individuals with disabilities. Additionally, there are five titles: employment, transportation, state and local government, public accommodations and telecommunications. I lost my vision many years after the ADA was passed so didn’t know much about this law or feel its full impact. It wasn’t until the late-90s when I was dealing with employment and transportation that I began to completely understand its authority and be grateful for its existence.
First Reason is Employment
When I went blind, I was young and entering the workforce. My employer was familiar with the ADA and provided work accommodations. I was given magnification devices, low vision aids and later when my vision worsen screen reading software for my computer. Since that time at every job I have received the necessary work accommodations. using these tools have not only helped me to work, but continue working, boost my self-esteem and enhance my quality of life.
Second Reason is Voting
I have been voting since I was eligible, but when I went blind the process changed. Thanks to the ADA I can now vote with accommodations. State and local governments must provide assistance to a blind person whether it is to offer an absentee ballot, read voting information and/or have an accessible voting machine. I have shared about my recent challenges voting in Georgia’s primary elections but it is because of the ADA that I can speak up and advocate for myself.
Third Reason is Website Accessibility
Since I work from home and use the internet constantly, I interact with inaccessible websites daily. Graphics with no alt text, edit boxes that don’t work, check boxes that don’t check and on and on. I also struggle with inaccessible mobile apps on my iPhone. But the ADA says that websites must be made accessible to people with visual impairments. Some folks say that the ADA does not specifically address the internet and was written prior its creation but the world wide web is considered a public accommodation and is covered by this law. A recent lawsuit against Domino’s Pizza demonstrates this point.
Fourth Reason is Entertainment
One of my favorite forms of entertainment is watching a movie. A fast-pace action, suspense thriller, a funny comedy, a classic animation, a gory horror or a sappy romcom—I love them all! But the funny thing is that I didn’t really get into movies until I went blind and couldn’t see the screen! Go figure?! Then I really, really didn’t get into movies until audio description became readily available. The ADA requires that movie theaters provide audio description to blind and visually impaired people so now I can watch the latest blockbuster.
If you are a person with a disability or know someone who is what ways are you thankful for the ADA? There are a lot of things we still have to work on when it comes to equal access and full inclusion. As I shared before, I still struggle daily with website accessibility and mobile apps. I also have challenges with attitudinal barriers because of the intersectionality of my disability, race and gender that I contend with often. However I celebrate the numerous achievements we have made in these past 30 years and look forward to more success.
In the last few months many people have had to transition from working in an office to working from home because of the pandemic. Folks have had to make major adjustments to home and work life. They Have had to share space with family, increase WIFI bandwidth, find ways to stay active and deal with boredom. These are some of the dilemmas I have been reading about. But for me working from home has been my new normal for the last couple of years. Well, actually to be honest, I worked from home before around 2005 or so when I first started freelance writing.
so, when the virus came and businesses had to shut down and we had to shelter in place, staying at home was not entirely new to me. It was not a major adjustment. But I did empathize with the challenges that people were dealing with because I remember when I made that same transition too. I remember the first couple of months of walking around in a fog trying to figure out my next plan of action. I had quit my job without a new position to immediately jump into. It was a little scary but I was determined to make my new life work and I have done so.
First thing I did was give myself time to breathe and get my Barings. I remembered that first month or two I was running around like a chicken with the head cut off. Before I knew it, I was exhausted. I quickly realized that this type of schedule was not going to work in the long term. I needed to pace myself. I used this time to rest, reflect and rejuvenate. For the last 10 years I had been working very hard, sometimes 2 jobs, and making long commutes to work, about 3-4 hours daily, and I was tired. I knew I needed time to just pause before starting my next venture.
Second thing I did was get on a schedule. So, each day I woke up at a set time, did my morning routine of shower, breakfast and exercise. then I hit the computer to do my daily work. I would stop at about 3 p.m. and do something fun that I enjoyed for the rest of the day. This became my new normal and it really started to work well for me.
Third thing I did was stop feeling guilty for making this change in the first place. I had felt a little torn when I resigned but ultimately knew it was the best decision for my life. As time passed, I began to feel happier, whole and more complete. My sleeping got a bit better and my outlook on life got brighter. Before I knew it, the writing work I desired flowed in.
Today, I am doing the work I love from my home office. I learn something new every day and do work that stretches my skills and abilities. I no longer have long commutes to a stuffy office. I no longer perform task that didn’t maximize all my talents and skills. Today working from home is my new normal and I have no plans to change it for anything.
Ever since I lost my vision in the late 1990s to Vogt–Koyanagi–Harada (VKH) syndrome, which is an autoimmune disease characterized by chronic, bilateral uveitis, I made a decision that I would strive to live a happy life. I was determined that my blindness would not control me and I would figure out how to live and make peace with my situation. Now, let me tell you this was not an easy decision! I still have struggles with it to this day. But it is something that I work at on a regular basis. On March 20th we will be celebrating the International Day of Happiness where the theme is Happiness Together; focusing on what we have in common rather than what divides us. This theme ties right into my own personal philosophy of life. One of the things that has kept me going and staying happy as a blind person is the positive community of friends I have cultivated over the years. I have worked on being a part of groups that feed me and fill me up. It is important to be around positive people but also people that are honest and will tell you the truth along with allowing you to vent and release your frustrations. It has been especially uplifting with the epidemic of the coronavirus. I have been talking to friends daily as we have been checking on each other and having encouraging conversations.
But during those early years I would have never realized that my life would have taken such a drastic turn. When I went blind, I had no idea that I would be permanently disabled and also working in the disability community. Today I am a writer, blogger and consultant in this arena. It is like what Helen Keller said, “When one door of happiness closes, another opens; but often we look so long at the closed door that we do not see the one which has been opened for us.” My plans after college were to work in the public relations field, make lots of money, purchase a nice car and a beautiful home. It was not to go blind. I could have focused all my attention on what I lost. That would have been very easy and expected. No one would have hardly blamed me. But I decided to shift my mindset because I had a long life ahead of me and I wanted to be happy in the life I was going to have blind or not. It was a decision I had to make. So, I took lemons and made lemonade. I used my journalism degree and worked in the disability industry. That is where I am today. I realized that I am responsible for my own happiness. I can’t blame my blindness or other people for that.
So, as we celebrate International Day of Happiness, I encourage you to not only make a personal decision to be happy but find ways to help others be happy too. Be intentional in your acts of kindness. It doesn’t take much. It is easy for us to focus on the things that divide us but true happiness comes from seeking out the common ground and seeing our humanity.
Martin Luther King, Jr., Harriett Tubman, Sojourner Truth, Washington Carver, Rosa Parks, Malcolm X, and Fredrick Douglas – these are names of famous African-Americans that are well known and observed during this month. But this year I wanted to bring to your attention a famous blind man whose story is not typically in the history books or spoken about in daily conversation. Thomas Wiggins who was born a slave in Columbus Georgia in 1849 was an incredible musical performer and entertainer. From a very small age he traveled all over the US and Europe playing classical music and performing on stage to massive audiences. He was also known for having what we know today as autism and was a musical savant.
What makes his story so incredibly compelling and sad is that he was never fully emancipated. After the Civil War was over his parents signed an agreement with General James Neil Bethune, a lawyer and newspaper editor, to a five year contract of indentured servitude. During this time in history African-Americans who were newly freed and uneducated were not able to exercise their full rights, especially a former slave that was disabled. His parents felt that it would be better for him to be under the care and protection of someone they knew than to run the risk of him being abused or even stolen by strangers. This unfortunately began his life of permanent servitude; never being completely free until his death in 1908.
From the time he could walk, Tom developed a deep fascination with nature and sound. Once his master purchased a piano it was virtually impossible to keep Tom from being close to it and wanting to play. His desire was so great that he became quite emotional and would literally throw temper tantrums if his wishes were not met. His master soon discovered that Tom had an incredible talent for music and could play very difficult pieces with little to no practice time. His master started to place Tom in minstrel and side shows around the country. He was known for being an obsessive and demanding child with a healthy appetite that continued into his adult life.
Tom was known for playing the piano for hours on end. He would play Beethoven, Mozart, and other classical musicians. He even composed several pieces of his own. During his lifetime he was one of the most well-known pianists and made thousands of dollars for his owners which in today’s terms would be millions.
One of the most important things that contributed to Tom’s slavery and permanent servitude was the transfer of ownership. When he was a young musician and traveling across the United States he was owned by General Bethune. Then later ownership was transferred to his son, John Bethune. After John died in a train accident, he went back to General Bethune; but lost in a court battle to John’s wife, Eliza, who became Tom’s last and final owner. These transfers of ownership were all attempts to keep Tom and the money he made with little regard to his family. Tom’s mother made legal attempts in vain to free Tom but his owners were always able to elude the legal system. In 1904, Eliza, after 40 years of performing, took Tom off the road when he had a stroke and had difficulty playing the piano. Four years later Tom had another stroke that ended his life. Tom was buried in New York but the citizens of Columbus, Georgia raised a headstone in his honor in 1976.
I first learned about Tom several years ago attending a performance of his life at a local community theater and I was captivated then and still am to this day. As a blind African-American woman, a descendant of slaves, and live in the South his story speaks to me in a very powerful way. Plays, films and books have all been written and performed to capture Tom’s incredible life story. There is also a websitedevoted to him and YouTube videos where you can hear his music. I found and read Two books from the National Library Service for the Blind and Print Disabled in digital format. They are listed below:.
1. The Ballad of Blind Tom by Deirdr O’Connell
2. Blind Tom, the black pianist-composer: continually enslaved by Geneva Southall